New kinds of data often challenge organizational forms. Home health monitoring devices present an exciting opportunity to create and use new forms of health data. However, health information, like all data, is embedded in organizationally and socially complex relationships and environments. This project, funded by Intel, examines the social, organizational and institutional arrangements around emerging consumer-oriented digital health tools and applications. The key questions in the research point to the tensions between institutions (e.g., health care systems) and individuals (e.g., hackers, technologists, consumers) in the generation and control of data, especially in a moment of transition in the U.S. health care system.
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